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Iowa PKU Families!

$90.25 Raised!

Start: May 3, 2018 - End: Jun 15, 2018

Iowa PKU Families!

May is PKU Awareness Month, and this is your opportunity to help us out. All proceeds will go to benefit the Iowa PKU Foundation in helping PKUers and their families across the state. We need your help to raise awareness, advocate and support Iowans who have PKU.

PKU is a genetic condition that people are born with. If untreated it will lead to severe mental handicaps. Treatment includes a severely limited diet that limits protein intake. Many PKUers can only handle about 8-9 grams of protein a day. The condition requires the restricted diet for life to avoid serious medical conditions and mental health problems. In the state of Iowa, there are approximately 150 people with PKU.

Advocating and supporting PKUers is expensive. A day of medical formula, which is where PKUers get about 70% of their nutrition, costs over $13.00 everyday for an 8-year-old.  A loaf of bread is $13.99 before shipping and many insurance plans don’t cover formula or food, and even if they do, deductibles and out of pocket maximums are rising fast. Educating lawmakers takes time and effort.

Our goal is to help PKU families right here in the state of Iowa! State funding was cut in 2017, and many families struggle to pay for the very expensive food and formula. We want to help them!


Fund Leader: Jackee Austerman
Fund Type: Non-profit Organizations, Medical Causes

Purchase with Purpose

40% of every product purchased is donated

Iowa PKU Families! Discussion:

One Comment

Stephanie Collins says:

Hello everyone! My name is Stephanie Collins I’m a 23 year old girl who was diagnosed with classical PKU when I was 10 days old. My husband and I recently moved down from CT to Iowa and I have my first apt tomorrow and set up my insurance last week in hopes that it’ll cover my food and formula. It’s amazing to see this site up and running and people actively giving to the PKU community! Also very amazing to see that there are 150 people here that have the condition, coming from a small state I knew no one with it which made it pretty hard growing up. To be involve in this area has me excited, I’d love to hear others stories and chat!

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