Iowa PKU Families!
Start: May 3, 2018 - End: Jun 15, 2018
May is PKU Awareness Month, and this is your opportunity to help us out. All proceeds will go to benefit the Iowa PKU Foundation in helping PKUers and their families across the state. We need your help to raise awareness, advocate and support Iowans who have PKU.
PKU is a genetic condition that people are born with. If untreated it will lead to severe mental handicaps. Treatment includes a severely limited diet that limits protein intake. Many PKUers can only handle about 8-9 grams of protein a day. The condition requires the restricted diet for life to avoid serious medical conditions and mental health problems. In the state of Iowa, there are approximately 150 people with PKU.
Advocating and supporting PKUers is expensive. A day of medical formula, which is where PKUers get about 70% of their nutrition, costs over $13.00 everyday for an 8-year-old. A loaf of bread is $13.99 before shipping and many insurance plans don’t cover formula or food, and even if they do, deductibles and out of pocket maximums are rising fast. Educating lawmakers takes time and effort.
Our goal is to help PKU families right here in the state of Iowa! State funding was cut in 2017, and many families struggle to pay for the very expensive food and formula. We want to help them!
THANK YOU for supporting IOWA PKU FAMILIES!!
Fund Leader: Jackee Austerman
Fund Type: Non-profit Organizations, Medical Causes