John Henry Ihus
Start: Mar 3, 2021 - End: Mar 31, 2021
“This is a marathon not a sprint” is repeated to our family on almost a daily basis. John Henry Ihus was diagnosed with Congenital Diaphragmatic Hernia (CDH) at 28 weeks gestational age. His Momma, Nikki, and Daddy, Joe, were completely taken off guard when a normal pregnancy turned into a fight for their first child’s life. CDH affects 1 in 2000 births with a 50% survival rate nationwide. The organs that normally live in the stomach migrate through a hole in the diaphragm severely limiting the growth of the lungs.
John Henry was born September 19th, 2019 and put on ECMO, heart and lung bypass, within 24 minutes of life. The following day, he underwent surgery to repair the hole in the diaphragm and move the organs back into the abdominal cavity. John Henry spent over 5 months in the CDH ICU at Johns Hopkins All Children’s Hospital in St. Petersburg, FL and passed away on March 11th, 2020 due to complications.
To honor John Henry, Joe and Nikki would like to raise money for a charity close to their hearts. The proceeds from these t-shirts and this Fund will be donated to Little Light of Mine on his behalf. Little Light of Mine provides complimentary professional photography services to families in the Tampa Bay area who have a child fighting a life-threatening illness. Because of this charity, Joe, Nikki and John Henry were able to record his last day and make it extremely special.
Fund Leader: Sue Wood
Fund Type: Medical Causes