The Beginnings of a Champion
Jordan’s life began on July 29, 2009, which happened to be her parents’, Steve and Jen, third wedding anniversary. She was born five weeks premature, weighing 4 pounds 9 ounces. Fortunately, she thrived and did not require a stay in the NICU.
A Champion is Revealed
On February 20, 2014, at just four years old, Jordan was diagnosed with acute lymphoblastic leukemia (ALL). With the hope of a 95% survival rate, Jordan began a two-year chemotherapy course. With chemo running through her blood and having lost her hair, Jordan attended the first day of kindergarten and was present nearly every day thereafter while still undergoing treatment. She learned how to handle difficult situations and did so with grace and maturity beyond her years.
A Fight is Not Won by One Punch…Learning to Endure
Seeing the light at the end of the tunnel with six months of treatment remaining, Jordan fell victim to an unexplained high fever in November of 2015. She was admitted to Rady Children’s Hospital and rapidly lost her ability to speak and walk. Her fever reached a deadly level of 107 degrees leading to multiple seizures and triggering a transfer to the pediatric intensive care unit where she was placed into a medically-induced coma. Two weeks later, she was diagnosed with West Nile Encephalitis as a result of a mosquito bite. Jordan’s immunocompromised state from the ALL and chemo was more than she could handle, and explained why her symptoms were so severe. She would remain in the PICU for seven more weeks where she underwent a tracheostomy and became ventilator-dependent. She spent her sixth Christmas in the pulmonary unit that became her residence for the next 4 months. During this time, she had surgery to insert a g-tube for feedings. Shortly after being weaned off the ventilator and having the trach removed, she returned home in April to a long-awaited reunion with her 4-year-old brother.
Giving Can Feel as if it Costs You Nothing
Currently, Jordan is 8 years old and suffers from spastic quadriplegia resulting in an inability to walk, use her upper extremities, or talk. She primarily relies on her g-tube for feedings. In June of 2017, a Baclofen pump was implanted in order to receive medicine injections directly to her spinal fluid. With the use of eye gaze technology, Jordan is able to communicate via a computer with family and friends.
Every morning Jordan wakes up with a smile on her face. She is a sweet and kind girl who loves her family, friends, music, dance, and school. Through her inspiration, our family promotes positivity and hope.
Here is where you can help. We anticipate Jordan will be limited to a wheelchair for the rest of her life. That being the case, Jordan cannot be transported in a typical vehicle and requires a converted van with wheelchair access. Jen is responsible for taking Jordan to school, physical therapy, occupational therapy, speech therapy, and doctor appointments using a van that lacks the wheelchair accessibility. This schedule puts the burden of lifting Jordan, 50 pounds, and her wheelchair, 75 pounds, in and out of the van multiple times a day. As hard as it is to admit, our family cannot sustain this inaccessibility for the long term.
Due to consistent medical expenses and time off work to care for Jordan, we do not have the means for the needed van conversion. We would greatly appreciate your support in order to make the necessary conversion. In doing so, it would increase the ease of transportation, reduce any risk of injury, and provide comfort not only to those of us driving but to our little Champion, Jordan.
Thank you for your consideration.
Steve, Jen, Jordan, and Landon Keller