Jadon's Accessible Van
Start: Aug 21, 2019 - End: Sep 30, 2019
When Jadon was diagnosed with Spinal Muscular Atrophy (SMA) on August 25, 2009 at 2 months old, we were told there was nothing that could be done. As first-time parents, Tony and I had never heard of SMA nor did we realize we were carriers of the recessive gene that causes SMA, the #1 genetic killer of infants under the age of two. Image our heartbreak and devastation being told we would be lucky if Jadon lived to be nine months to a year old. Babies diagnosed with SMA Type 1 are given a 50% chance of living to their first birthday and only 10% chance of living to their second birthday. All the hopes, dreams and plans we had for our little family were instantly shattered into a million little pieces.
We purchased our current van in 2010 and honestly didn’t know how long we would “need” a van. Sadly, the statistics were stacked against us. While we had lots of HOPE for Jadon’s future, it was very difficult to allow our hearts to dream beyond the present. Now here we are with a rock-star 10-year old boy, allowing our hearts to dream. ???? As Jadon has gotten older, he has grown (praise God!) quite tall and requires lots of medical equipment to be transported with him. He is literally outgrowing our van. Also, our van is not accessible with a lift so we have to push over 175 lbs up telescopic ramps to get him in/out of the van. This is becoming unsafe for him as well as Tony and me.
Tony and I have been talking about ways to make this van for Jadon happen, because let’s be real – they are reaaaalllyy expensive. ???? Even with my day job and side hustles for both of us, we realize we need help! We have a BIG goal of having $10K to convert a van to be accessible. So we are stepping out of our comfort zone and stepping into faith asking our family and friends for their support to make this van happen for The BUG! ????
Fund Leader: Kristin Burks
Fund Type: Medical Causes