Start: Jan 1, 2020 - End: Dec 31, 2020
In 2010, a Super hero was born! Nash Gehrls was Born with a very rare and complicated medical condition called PFFD (Proximal Femoral Focal Deficiency). Nash’s femur bone on his right leg was half the length of his left. His hip and knee were deformed as well. This energetic, smart and curious 9 year old has endured 2 major hip surgeries and one leg lengthening in his life, so far. We are currently preparing for his 9th surgery and 2nd leg lengthening on May 20, 2020. This will require our family to travel to Florida and stay there for 3 months.
HERE’S A LITTLE MORE OF THE BACK STORY. KEEP READING…
Before Nash was even born, we knew about his condition and discovered a World renowned Orthopedic surgeon in West Palm Beach, FL, that developed and performs the surgeries Nash needs to correct his deformities. Dr. Dror Paley is located at the Paley Institute in West Palm Beach, FL. He has an Amazing team of surgeons and incredible physical therapists. We are so lucky to have found them to treat our son.
In August of 2012, at 2 years old, Nash had his first surgery. It was an 11 hour Super hip/knee surgery to correct his deformities and prepare for his first leg Lengthening.
When Nash was 3-4 years old he had his first leg lengthening. He gained 8cm (about 3 inches) during this lengthening. He is now 9 years old and we are hoping for 5cm of new bone growth this time. Each leg lengthening requires us to be in West Palm Beach for approximately 3 months. Nash endures Daily, aggressive physical therapy (3 times a day) to ensure a successful lengthening process. We also have an appointment with the doctor every 2 weeks, which includes an x-ray to make sure the new bone is growing successfully.
In addition to the surgeries, we are encouraged to make yearly visits for check-ups. This is to make sure everything is growing as it should and to hopefully prevent any unexpected surgeries.
This whole process is not only emotionally difficult, it is extremely financially straining.
We truly could not have come this far without our amazing friends and family helping us along the way. We are so grateful for each and everyone of you!! Thanks for shopping to support SuperNash and his journey for 2 legs the same length!! We love “Nash T-shirt sightings”. It truly means the world to us. ❤️We will continue to keep you updated on his progress.
Chris, Caroline, Aidan, SuperNash, and Hattie Gehrls
Fund Leader: Annie Vander Werff
Fund Type: Other Groups & Individuals